Evidence based massage therapy group

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This community fosters healthy exchange of knowledge and information and encourages the practice of evidence-based massage therapy based on credible research. Persons interested in higher education in this area might also benefit from being a member.

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I Need Help w/a Difficult Case

by Laura Allen

Aug 13, 2009

There are so many great minds on here, please assist if you can.

I just started working on a 5 year old yesterday who was diagnosed at birth w/macrocephaly, low muscle tone, and no deep tendon reflexes. She was given PT from about 4mos-8mos and then the drs said no use, she would never be able to walk.

Hogwash! She walks just fine, although she is a little pigeon-toed, and she has normal intellect. n my first session I used PNF to assess what kind of strength she has. She was very cooperative. She feels no pain. She has in the past had multiple dislocations in her shoulders and wrists and doesn't feel it. Does anyone have experience w/a case like this, or suggestions for working on her? I would love to be able to improve her circumstances.

Thanks!
Load Previous Replies
  • up

    Rene Roberto

    I just heard a case today at a CEU course in CranioSacral II of hydroencephaly. There were wonderful improvements with CST applications. Maybe it is also applicable to macrocephaly? I am going to ask the instructor tomorrow.

    Rene.

    Aug 14, 2009

  • up

    Bert Davich

    Hi Laura,
    I didn't have a clue about macrocephaly until your post and a subsequent search.

    One thing did jump to mind regarding the low muscle tone issue. Have you considered "Active Isolated Strengthening Exercises" (not just stretching) that Aaron Mattes pioneered? This is only a suggestion that you might evaluate, not a recommendation.

    Dec 5, 2009

  • up

    Laura Allen

    Thanks for the suggestions. I actually have not had the chance to work on her in a couple of months now.

    Due to her lack of muscle tone and lack of reflexes, she does not feel it when it is time for her to urinate or defecate, and her mother has trained her to just go on schedule (as best she can). She gives her fiber every day for her bowels. but the little girl is very prone to getting UTI which frequently wind up systemic and necessitate her going to the hospital. That is what's happened now.

    Bert Davich said:
    Hi Laura,
    I didn't have a clue about macrocephaly until your post and a subsequent search.

    One thing did jump to mind regarding the low muscle tone issue. Have you considered "Active Isolated Strengthening Exercises" (not just stretching) that Aaron Mattes pioneered? This is only a suggestion that you might evaluate, not a recommendation.

    Dec 5, 2009